1. General Regulations

The Wiener Medizinische Akademie GmbH (WMA GmbH) reserves the right to amend the existing data protection regulations in strict accordance with prevailing legal norms at any time.

1.1. Personal Data:

Your voluntarily transmitted personal details (through submission in the online forms respectively sent by your group coordinator) will be collected, saved and processed in accordance with the most recent legislation on data protection (EU-GDPR 2018).

By registering for the conference, you further agree to the use of your data (name, home address, email address, telephone number) to meet the Covid-19-safety measures and to forward the information to the Covid-19 representative. In case of a suspected or confirmed case, the organizer / society / meeting office as well as the Covid-19 representative are obliged to forward this information to the legal authorities. Therefore, please indicated within the registration process the email address, which you actually check regularly on a basis of 24-48 hrs, as well as you telephone number where you can be reached at any time.

Registration, abstract submission, additional bookings & hotel booking:

A registration and/or abstract submission to ESHG 2025 conference is not possible without collecting, saving and processing your personal data. This is solely for the purpose of organising and realising the event. Your data will only be passed on to third parties, who are directly involved in running the event and when the organisational process makes it necessary – in accordance with your bookings (registration, virtual conference platform login, organising society, hotel, transport companies, travel insurance, etc.).

1.2. Photos/Films:

By registering to attend ESHG 2025 conference, you grant permission to the WMA GmbH as well as the organising society to use photos/films taken from you respectively and/or your company presence in the virtual platform during the meeting for marketing purposes (event reporting, promotion of follow-up events & self-marketing) for an indefinite period of time. If you do not want to have any photos/films taken of you published, you may contact us at any time: dataprotection@wma.co.at.

1.3. Links to other websites:

Our online forms may contain links to other websites. The WMA GmbH is not responsible for the data provided on other websites. Our partner companies are also bound to act according to EU-GDPR, the implementation however rests with each company individually. Our data protection guidelines are solely applicable to data controlled by us (WMA GmbH).

2. Information Obligation acc. Art 12-14 EU-GDPR (EU-DSGVO)

We would be pleased to provide you with the following information describing the type, purpose and scope of the processing of your personal data.

2.1. Controller & Processor

European Society of Human Genetics / Wiener Medizinische Akademie GmbH, Alser Str. 4, 1090 Vienna
T: +43 1 405 1383 0
E-mail: dataprotection@medacad.org
Management of the person responsible: Mirjam Uebelhör, Jerome del Picchia
Data Protection Coordinator: Mirjam Uebelhör
The data are collected within the framework of the ESHG 2025 conference

2.2. Purposes of Processing:

Depending on the participant status and the bookings of the data subject (see Booking Overview E-Mail), the data are processed for one or more of the purposes listed below.

Processing Purpose Data Categories
Participant Management
(Virtual Conference Platform, Registration, Additional Bookings)
name
contact data
address data/invoice data
registration data
additional bookings
travel data (if necessary)
passport data (if necessary)
special requirements (sensitive data)
special dietary requirements (sensitive data)
Contact Tracing in the context of the COVID-19 pandemic name
contact data
address data
vaccination/testing status (sensitive data)
NOTE: data is only stored for 28 days and then deleted
Hotel Management name
contact data
address data/invoice data
hotel booking data
travel data (if necessary)
credit card guarantees (if necessary)
Scientific Management &
Coordination Grants und Awards
name
contact data
date of birth (if necessary)
date of graduation (if necessary)
lecture data (speaker, topic, title)
Industry Management
(Exhibition & Sponsoring)
name
contact data
company data
General Organisation /
Accreditation & Compliance
name & city/country
institution/organisation (if necessary)
specialisation (if necessary)
lecture data (speaker, topic, title)
General Organisation /
Accounting
name
contact data
registration data
additional bookings
bank data (if necessary)
credit card data (if necessary)
Marketing & Development name
contact data
photos/films
statistical data (ONLY anonymised)

2.3. Legal Basis for the data processing purposes:

Processing Purpose Legal Basis
Participant Management
(Virtual Conference Platform, Registration, Additional Bookings)
Binding completion of the registration for the participation of the selected event
Written confirmation of the group coordinator that participant data may be used
Binding booking of ticket(s) to one or more social events of the selected event
Binding booking of a travel insurance of the data subject – Wiener Medizinische Akademie GmbH acts as intermediate only
Consent of the data subject (sensitive data)
Contact Tracing in the context of the COVID-19 pandemic Fulfilment of legal obligations
Hotel Management Binding conclusion of a hotel booking by the person concerned or his group coordinator
Written confirmation from the group coordinator that participant data may be used
Scientific Management &
Coordination Grants and Awards
Binding completion of the abstract submission for the selected event
Acceptance of active participation in the selected event
Industry Management
(Exhibition & Sponsoring)
Binding contract conclusion of the data subject and the company represented by him/her to take part at the selected event
General Organisation
(Accreditation & Compliance, Accounting)
Fulfillment of contract and law
Legitimate interest of the controller (see point 4.4.)
Marketing & Development Legitimate interest of the controller (see point 4.1.-4.2.)

2.4. Third Party Data Recipients – Categories:

The recipients only receive the data they require, not your full data record. Your data will only be forwarded when the organisational process makes it necessary – in accordance with your bookings – and when a legal basis exists.

Processing Purpose Data Categories Recipient Categories
Participant Management
(Virtual Conference Platform, Registration, Additional Bookings)
name
contact data
address data/invoice data
registration data
additional bookings
travel data (only if necessary)
passport data (only if necessary)
organising society, service providers
(fulfilment agents)
special dietary requirements (sensitive data) Caterer
Contact Tracing in the context of the COVID-19 pandemic name
contact data
address data
vaccination/testing status (sensitive data)
competent health authorities (district authorities/municipal departments)
Hotel Management name
contact data
address data/invoice data
hotel booking data
travel data (if necessary)
credit card guarantees (if necessary)
DMC, travel agency, hotels
Scientific management & coordination of grants and awards name
contact data
date of graduation (if necessary)
Lecture data (speaker, topic, title)
JMarquardt Technologies GmbH (Krailling, Germany)
Industry Management
(Exhibition & Sponsoring)
name
contact data
company data
organising society, service providers
(fulfilment agents)
General Organisation/ Accreditation & Compliance name & city/country
institution/organisation (if necessary)
specialisation (if necessary)
lecture data (speaker, topic, title)
organising society, relevant accreditation authorities, service providers
(fulfilment agents)
General Organisation/ Accounting name
contact data
registration data
additional bookings
bank data (if necessary)
credit card data (if necessary)
organising society, responsible authorities, bank, fiscal office, tax consultant, service providers
(fulfilment agents)
Marketing name
contact data
BREVO (previously SendinBlu)
Development statistical data
(ONLY anonymised)
organising society

2.5. Data Storage Period:

Sensitive data (special dietary requirements), which are collected with consent of the data subjects, as well as passport data and information submitted for statistical data collection are irrecoverably deleted with the end of the event wrap-up.

Data collected for the purpose of contact tracing in the context of the COVID-19 pandemic: 28 days

All other data are stored for 7 years, to meet the retention period according to the Austrian VAT Act 1994 (Umsatzsteuergesetz 1994) and to permit post-event support and service (i.e. belated participation confirmations and presentation certificates).
In the case of (e.g. annually) recurring congresses, the data are stored for at least 7 years after the end of the entire event series.
Upon revocation of the person concerned, their data will be deleted immediately.

3. Data Subject Rights

We are pleased to inform you about your rights according to EU-GDPR:

3.1. Data Subject Rights acc. Art 15-21 EU-GDPR:

  • Right of access by the data subject
  • Right to rectification
  • Right to erasure/”Right to be forgotten”
  • Right to restriction of processing
  • Right to data portability
  • Right to object (at legitimate interest of the controller)

Detailed descriptions can be found here:
http://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=CELEX:32016R0679&from=EN
© European Union, http://eur-lex.europa.eu/, 1998-2018′

3.2. Right to withdraw consent acc. Art. 7 EU-GDPR

Depending on your participant status, we kindly ask you for different declarations of consent. These are queried within the online forms or directly inquired from the affected person/group coordinator/company representative. The declarations of consent are not compulsory according to the EU GDPR.

Each data subject has the right to withdraw his/her given consent(s) at any time. The withdrawal of the consent does not affect the legality of the processing carried out based on the declaration of consent until the withdrawal.

Processing of your data by European Society of Human Genetics (ESHG)
Your personal data (comprising name, contact data, address data, organization/institute & registration category), collected by the WMA GmbH, may be passed on to ESHG. The named society has permission to process your personal data and to contact you directly for own purposes incl. society newsletters, promotion of topic-related events, information about activities of the society (eg: membership, competitions, travel grants, etc.) and the evaluation and further development of the current event, as well as its future editions.

-> this declaration of consent is queried within the online registration

Transfer of your data to exhibitors and sponsors

Lead retrieval in the sponsor pages & at corporate satellites

Please note: If we have your consent to sharing your data with a sponsor at ESHG 2025 conference, you thereby agree that your personal data (consisting of name, last name, academic title, city, country, email, institution and demographic questions), collected by the WMA GmbH, may be forwarded (via a contracted service provider) to the sponsor you visited through the sponsor page and/or corporate satellite in the virtual platform, and the respective company may contact you directly for its own purposes.

If you have your badge scanned by an exhibitor/sponsor at the in-person ESHG 2025 conference, you thereby agree that your personal data (consisting of name, last name, academic title, city, country, email, institution and demographic questions), collected by the WMA GmbH, may be forwarded (via a contracted service provider) to the exhibitor/sponsor by whom you have your badge scanned, and the respective company may contact you directly for its own purposes.

3.3. Right to lodge a complaint with a supervisory authority acc. Art 77 EU-DSGVO

Every data subject shall have the right to lodge a complaint with a supervisory authority, if the data subject considers that the processing of personal data relating to him/her infringes to the EU-GDPR.

If in your opinion the data proceeding would be contrary to the data processing law or to your data protection high demands, you may complain to the Austrian data protection authority.

4. Description of other Purposes

Legitimate Interests of the Controller acc. Art 6 (1) f) EU-GDPR

4.1. Advertising/Marketing:

Processing data of the data subject to inform him/her about the above-mentioned event, as well as future and topic-related events.

4.2. Development:

Processing data of the data subject to develop the programme as well as the organisation and implementation of the above-mentioned event, future and topic-related events.

4.3. Publication of the programme:

Processing data of the data subject for the promotion and publication of the event programme via various communication channels (including website, virtual conference platform and print media). Concerns the following data subject categories: speaker & chairs, abstract presenters, industry

4.4. Accreditation & Adherence to national and international compliance regulations: DFP, CME, EFPIA, MedTech, etc.

Processing data of the data subject in order to organise the accreditation of the scientific programme and to adhere to national and international compliance regulations in the field of medical events.

Concerns the following data subject categories: organising society, speaker & chairs, abstract presenters, industry.